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STEP - Support Through Education Program

Step 2: Carers

Whilst the focus is upon the potential transplant recipient, family members and other support people are valued and appreciated for the care and support they provide. Carers and supporters play a vital role.

Managing hospital appointments, employment, family and other commitments whilst maintaining one’s own good health and well-being, can be challenging but is very important.

Tips for success

  • Eat super-healthily. Quick ideas:
    • Fresh or frozen vegetables for ease and nutrition
    • Fresh or tinned fruit, unsalted nuts and yoghurt.
  • Drink plenty of water - a cup every few hours.
  • No or minimal alcohol and soft drinks.
  • Regular sleep and regular exercise. Quick favourites include brisk walks, jog on the spot or around neighbourhood, skipping rope, gym equipment including weights such as dumbbells, stretch including stretch bands, dance, swim, exercise apps on phone or tablet.
  • Load books, podcasts, music and movies onto your tablet or smart phone.
  • Focus on a hobby or interest—online, community or home based.
  • Keep in contact with friends and family.
  • Take set and regular time out. Do not skimp on this.
  • Take a few slow, deep breaths every so often.
  • Share the care responsibilities wherever possible.
  • Be proud about how well you managed previous challenging situations. Consider what worked in the past and tap into those strengths again.
  • Seek counselling, support and information – team social worker, liver transplant coordinator, general practitioner for referral to a community-based psychologist or social worker, PAH pastoral care.
  • Visit Carers Queensland.
  • Visit Head to Health—mental health and support resources.
  • Visit Ask Izzy—mental wellbeing, and everyday supports and resources.

In this guide:

  1. Step 1: Waiting for the transplant
  2. Step 2: Carers
  3. Step 3: The gift of a donor liver
  4. Step 4: Admission for the transplant
  5. Step 5: The transplant operation
  6. Step 6: The intensive care experience
  7. Step 7: The transplant unit
  8. Step 8: Exercise is for life
  9. Step 9: Nutrition
  10. Step 10: Medications for life
  11. Step 11: Leaving hospital, attending clinics and other details
  12. Step 12: Life after transplantation
  13. In conclusion

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Last updated:
25 November 2022
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